Life-changing cystic fibrosis drug made available for children in Ireland
The drug has been life-changing for cystic fibrosis patients. The cystic fibrosis drug Kaftrio has finally been approved in Ireland. The drug was previously approved for teenagers and adults. Children with cystic fibrosis, aged between 6 and 11, can now access the drug. Minister for Health Stephen Donnelly announced the news this afternoon. He said […]
3 years ago
Irish family fear that they may be deported from Australia due to son’s medical condition
An Irish family living in Australia fear they may soon be deported. The couple, who have been living and working in Australia for almost a decade recently applied to become permanent residents in the country. During their application process, they were informed that their son, who has cystic fibrosis, may be denied as his condition […]
7 years ago
‘You feel everything… but you feel numb’: The reality of having a child with CF
This is her story.
9 years ago
CF ‘miracle drug’ will now be available to children from six years old
45 percent of cystic fibrosis sufferers are under 18.
9 years ago
Cystic Fibrosis activist Orla Tinsley confirms lung transplant was a success
WHAT a great Christmas present.
9 years ago
Cystic Fibrosis Ireland Vows To Fight HSE On Ground-Breaking Drug
Cystic Fibrosis Ireland have vowed to fight the HSE’s decision to turn down the ground-breaking CF drug Orkambi and have called for Health Minister Simon Harris to intervene. Cystic Fibrosis Ireland, Ireland’s national charity supporting people with CF, have expressed their dismay and opposition to the news – leaked yesterday to a Sunday newspaper – […]
10 years ago